Fibromyalgia Awareness Day: 3 Proven Tips for Blogging with a Disability

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Today is the day for those of us with Fibromyalgia and Chronic Fatigue Syndrome.

I was diagnosed with Chronic Fatigue Syndrome in early 2015 after a bad bout of a lung disease suspected to be Tonsillitis and a few months later they called it Fibromyalgia. It has been a nightmare psychologically, physically, and personally. And what can be one of the most difficult parts of having a diagnosis of “Chronic Fatigue Syndrome” or “Fibromyalgia” is that it is not an actual disease but a “syndrome”.

Definition of Chronic Fatigue Syndrome

A medical condition of unknown cause, with fever, aching, and prolonged tiredness and depression, typically occurring after a viral infection.

Definition of Fibromyalgia

A chronic disorder characterized by widespread musculoskeletal pain, fatigue, and tenderness in localized areas.

Symptoms of Chronic Fatigue Syndrome

The main symptom — fatigue for at least 6 months.

Other common symptoms include:
Pain in the joints or muscles, fatigue, inability to exercise, confusion, forgetfulness, lack of concentration, excess sleepiness, sleep disturbances, anxiety or apprehension, depression, headache, muscle weakness, sensitivity to pain, and sore throat.

The list is wide and I was diagnosed with CFS in 2015 because I’d had that bad lung disease in 2014 followed by overwhelming fatigue that overcame me suddenly.

Other symptoms from the list above I exhibited were: pain, fatigue, confusion, lack of concentration, excess sleepiness, sleep disturbances, anxiety, depression, migraines, sensitivity to touch, sore throat.

Symptoms of Fibromyalgia

Widespread muscular pain and tenderness is the main symptom.

Other symptoms include:

Chronic pain in the muscles, abdomen, back, or neck; fatigue; feeling tired; muscle tenderness, delayed onset muscle soreness, or muscle spasms; constipation, nausea, or passing excessive amounts of gas; anxiety, mood swings, or nervousness; forgetfulness or lack of concentration; sensation of coldness or tingling; pins and needles or sensitivity to pain; difficulty falling asleep or sleep disturbances; depression, flare, headache, irritability, joint stiffness, painful menstruation, sensitivity to cold, or tingling feet.

My doctors still have Fibromyalgia listed on my charts due to the following list of symptoms:

Widespread pain and tenderness, fatigue, spasms, constipation, gas (:O), anxiety, mood swings, lack of concentration, the sensation of coldness, pins, and needles, difficulty sleeping, depression, migraines, irritability, stiffness, painful menstruation, sensitivity to cold (and heat), tingling feet and fingers.

How to Blog with Fibromyalgia/CFS

It is difficult to give specific tips since everyone suffers so differently. For instance, I have difficulties using my hands and another friend with Fibromyalgia can knit with her hands. So these are general broad tips that have helped me. I hope they serve to aid you too.

Tip for Blogging with a Disability – Write in Bursts.

You will never know when you’ll have the energy to write (or even stay awake). So when you are strong enough, take time to pull out your laptop and jot down a couple of posts that you can schedule in advance.

Tip for Blogging with a Disability – Don’t Be Afraid of Using Aids.

When you first become disabled, you don’t want to be caught with a walker or using a wheelchair out in public. The same goes for home too. Who wants to admit that they have to use a combination of aids to use their computer for blogging purposes. However, without those aids, we would not be able to function. And even with the aids, I cannot function enough to work.

TWO of my favorite aids

#1. Arthritis Gloves – I have a collection of 5 gloves I rotate in and out (so I can wash them daily for cleanliness). With my gloves, it is amazing what I can accomplish versus when I am not wearing them. Thanks to hand therapy and the gloves, I am able to peck with my fingers on the keyboard without too much pain. It took a lot of practice and patience to develop a method for how I used the keyboard but now I am able to exercise my skills at blogging.

I have previously bought these gloves: Pnrskter and Duerer (with their pink and purple colored gloves) that deal well with the washing machine (I air dry them).


#2. Laptop Table – Thanks to my laptop desk, I have a place to rest my wrists and elbows. Since I cannot sit normally at a standard desk, I am able to recline with my legs elevated [pain] and use the lap desk to rest my wrists and elbows while typing at a much more comfortable position.

I bought my laptop table from TJMaxx locally but a similar one is the Honey-Can-Do portable laptop lap desk on Amazon.

Tips for Blogging with a Disability – Use Blogging Tools.

With the use of blogging tools, I am able to spend less time promoting my blog and can focus my efforts on completing blogs. While some of these tools have a price tag, they pay their weight in gold by how they help me.

2 favorite tools I use for blogging

Grammarly (Free) – When you have hand and arm pain and have difficulty typing (even with the above-mentioned aids, it is very helpful to add the Grammarly extension to your browser. It checks for spelling and grammatical mistakes.

Tailwind (Free Month Trial) – Do you know Pinterest is a search engine? It is crucial to use Pinterest to promote your business and/or blog. With Tailwind you can pre-schedule your pins so you don’t have to stress about getting online to pin when you’re having a bad hour or day.

There are also Tailwind Tribes to help you promote your best posts to likeminded Tailwind users. Do yourself a favor and try Tailwind for a month and see how it benefits your blog or business!

I hope these have been helpful tips and suggestions. And remember to take those much-needed breaks when fatigue overwhelms you and/or your hands start spasming and throbbing.

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blogging aids for disabled bloggers. How can you type better inspite of your disability? Does hand and wrist pain keep you back from blogging? Need to find aids for typing with your disability? What's out there for disabled bloggers? #disabled #accessibility #carpaltunnel #disabledblogger #accessibilityblogger #thejoyousliving

Disabled and wanting to blog? #blog #blogger #disability #disabled #fibromyalgia #bloggingtools #thejoyousliving

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21 Comments

  1. Brianne

    May 12, 2020 at 5:04 pm

    This was a very interesting read. I have a friend with fibromyalgia, and it’s very hard on her. It makes it hard for her to do almost everything. =(

  2. ashley

    May 12, 2020 at 5:51 pm

    I’ve heard of fibromyalgia but never really knew what it was. Thank you for this informative & educational post.

  3. Heather

    May 12, 2020 at 7:25 pm

    I never really thought of this, but it’s interesting to hear your perspective.

  4. Nicole Anderson | Camping for Women

    May 12, 2020 at 8:07 pm

    I found this post to be quite educational. While I don’t suffer from either of these conditions myself, the way you have described this has helped me understand what people suffering these conditions must be facing. Great practical tips to help achieve their goals with blogging.

  5. Knycx Journeying

    May 13, 2020 at 12:00 am

    didn’t actually heard about this before and thanks for the information; I will share this with people I know in case they are also in the same situtaiton – Knycx Journeying

  6. Jessie

    May 13, 2020 at 3:20 am

    I’m a fulltime blogger with fibromyalgia. It is so hard to live life normally, and your tips are amazing!

  7. Ray

    May 13, 2020 at 4:52 am

    Good to know this. I had a coworker with Fibromyalgia so I had a small insight into what it was like for them, but this puts things a lot more in perspective. Thanks for sharing.

  8. Life Mag Health

    May 13, 2020 at 5:25 am

    Fibromyalgia is indeed a debilitating disease which every one should be aware of. Nice perspective on how to blog about it. Great job!

  9. Steven Morrissette

    May 13, 2020 at 6:27 am

    I didn’t know that much about fibromyalgia, you gave a really good explanation that informs me well. I am happy that you can find ways to not let it control your life. Your article was inspiring thanks for sharing.

  10. littlemisadvencha

    May 13, 2020 at 8:53 am

    thanks for sharing this awareness. a very interesting read! it opens my mind to things like this.. thank you for inspiring us!

  11. Nilakshi

    May 13, 2020 at 9:56 am

    This post is so informational and educational. Thanks a lot for sharing.

  12. Marie Phillips

    May 13, 2020 at 10:09 am

    The gloves are a great idea. Also, have you tried voice typing? There are several options online for this. I think both Word and Google do it. Anyway, it wouldn’t get you any exercise for your fingers, but it could allow you to keep going when your pain isn’t playing nicely.

  13. Ivana Mearns

    May 13, 2020 at 12:18 pm

    It’s sad how many people suffer from invisible diseases. I had CFS for years, had to do lots of detox and had to try really hard to bring my immunity system back to balance. I’ve always considered myself lucky though as Fybromyalgia sounds even more challenging than CFS. I hope that you will recover fully soon.

  14. Brianna

    May 13, 2020 at 1:09 pm

    Woah, this is very interesting!! I am doing research on this because I am always tired! Thanks for sharing!

  15. Dreams Abroad

    May 13, 2020 at 2:10 pm

    These are some amazing tips for blogging with a disability. Everyone should give it a try and do let it hold them back.

  16. Emman Damian

    May 13, 2020 at 5:33 pm

    I studied fibromyalgia in the university and graduate school. I didn’t know that there’s an Fibromyalgia Awareness Day! Thanks for the tips too! Very helpful!

  17. Melanie williams

    May 13, 2020 at 9:54 pm

    It is always good to raise awareness of any illness like this. Great post and thank you for sharing x

  18. Natalie

    May 15, 2020 at 2:18 am

    It’s good you blog about this condition and spread awareness. Great post and keep on writing. Thanks for the tips too.

  19. Lyanna Soria

    May 15, 2020 at 5:17 am

    I’ve heard of fibromyalgia but I didn’t have much knowledge about it. Thank you for sharing and spreading awareness about this condition

  20. Elicitfolio

    May 17, 2020 at 1:08 pm

    I have a friend who was recently diagnosed but enjoys writing. Thank you for putting together this beautiful article so I can share this with her. I also love your recommendation about Grammly!

  21. Lily

    May 17, 2020 at 11:34 pm

    Glad you brought more awareness about fibromyalgia. I didn’t know the true affects of this but thanks for sharing more!

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