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FYI: For any new readers, thanks for visiting! And many pardons in advance for errors because I use a dictation app to write my posts due to my pain.
After my last post on my Fibromyalgia frustrations you probably are wondering what I would consider a “good day”…
Man, that is a really tough one! Today I was reading an article on questions to ask your doctor about Fibromyalgia and Chronic Fatigue Syndrome (another diagnosis that’s been floated around) and I wanted to hurl. It was so sad and depressing to read questions such as whether I should take my medication and when I’m having a good day feeling fine. I wanted to laugh, cry, hurl, et cetera. What gibberish to say that I was having a fine day and didn’t any my medication. With my medication I’m lucky enough to feel a level VI pain on a good good day. And Yes I was a deliberate good good day. LOL. But the truth is I don’t know what it means anymore to feel fine. I don’t know what I mean to say is this too much exercise? I don’t know what it means to Question how much is too much. Actually I do know that question. There are times when I wonder are you going grocery shopping on a Saturday with my dad that will have me incapacitated for the rest of the weekend. Or whether going to retirement party at a friends home will be too much and cause me to have anxiety, excessive exhaustion and horrible pain otherwise can be avoided. So yes I do know the latter question but I wish oh yes I wish that I knew the question of can I take my medication on a fine day when I don’t feel like I needed. That would be a fabulous day.
But we are speaking in real terms and so I will describe today what a good day is. Yesterday I had a good day. I rested in the morning, Took my medication, petted the dog, did a little Google research of no importance, made lunch, and managed to shower. All before 4 o’clock in afternoon. And this was thankfully a good day and gosh darn it I lost my page again. I am just complained about how much I hated dictation app because I’m always losing my space, having my work deleted, or being transferred to a completely different page that has nothing to do with my. Post. And guess what it happened again. So let’s try to keep this short or I might go crazy LOL. So mom suggested we go to see a movie to get out of the heat because our home does not have air conditioning. Heat wave days are the worst especially because of my heat intolerance in combination with the lack of the cool air. So we googled movies playing and I am woefully out of touch with what is playing currently. We decided on Antman, bought our tickets online and headed out to them mall. I am thrilled to say we found a parking spot in the very front of the lot’s. Thank God for my handicap placard and for perfect timing. We parked and walked over to the red Robin next to the movies. Somehow I must’ve been woozy and more uncorrelated on my feet than usual so walking with my cane was quite amusing. Thankfully no one was tripped away needed to our destination in one piece. We were seated at a booth which is always my favorite meaning I can stretchout my legs to the other Seat and propped my elbows and wrist up on the table. Yes I probably would not work in a fine dining restaurant but this was a chain burger restaurant. Perfect for slouching getting comfortable or at least as comfortable as can be in a public environment.
After dinner mom and I went to the movies discovered our seats were upstairs so thank the Lord there was an escalator so up we went. I was doing pretty fine after our dinner so we settled in to the so Called recliner seats which were really not. The good thing about our seats was that because they were in the front row of the balcony I was able to stretch out my legs and I was able to use the armrest for my elbows and wrists. So we settled in and had some good laughs watching Ant-man. Gosh darn it. Fails me once again. Okay back to the story. As far as comfort goes I would rate these chairs a C. They were comfortable like sinking into a couch and had the necessary armrest. Unfortunately they did not recline so my neck and back suffered more than I’d hoped. The tough part was when the movie was over I was pretty week and unbalanced getting up. So took a little maneuvering to get out of my chair and out of the Cinema. We walked slowly back to the car and by the time I had open the passenger door I was counting my lucky stars that moms car was so close. I don’t know if I could’ve walked anymore steps. What’s that saying, God only gives you as much as you can handle? Was quite true in our case that evening. So we headed home I grab my ice pack my pillow and laid down to cuddle with my dog as much as he will let me. That my friends is what I would call it a good day. My pain level was primarily at a low of six. I was with my mom. Being with people is always a blessing. I did something different that I can’t even remember the last time I did by going to dinner and a movie. I Lived to tell about it. That is a good day.
What is your idea have a good day? Feel free to sharing the comments below as I go get a fresh ice pack and some more medication for my pain LOL. Hey I didn’t say life is perfect or even back to what I would call normal but it’s something. Days like these I think of when I’m feeling exceptionally frustrated with my situation. Until next time xo.
PS thank you for overlooking the errors due to my using a dictation app.