Excited to Join People with Chronic Illnesses Linkup Party [August 2020]

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Excited to be part of my first linkup party for People with Chronic Illnesses.

I have been fortunate enough to get to know Sheryl of A Chronic Voice thanks to our mutual involvement in Facebook Groups such as Bloggers Growing Together and Chronic Illness Social Pod. She has a monthly linkup party with other bloggers with chronic illnesses and this August I am excited to join the linkup for the first time.

Sheryl provided 5 writing prompts and each blogger needs to write about at least 3 of the prompts. Hopefully, you’ll enjoy reading this and my stories might be encouraging for others who read this.

Prompt #1: LIMITING for People with Chronic Illnesses

Has the lockdown limited you in some way, or continues to do so? Or perhaps you could talk about the limitations in terms of accessibility in society and the workplace. Perhaps you find yourself confined to your home or to certain people, or youโ€™re limiting your sugar or fried food intake! You could also be limiting screen time for you or your child, or trying to limit the amount of stress or pain in your life.

Due to my Pulmonary Alveolar Proteinosis, my pulmonary doctors have asked me to stay home. I can go out for doctor appointments and walk the dog in the morning (wearing my mask). But for the most part, my life resembles Rapunzel‘s locked up in my ivory tower. In many ways, my lockdown and isolation at home remind me of when I had to stay home 24/7 except for doctor appointments that required a Ventura Transit driver since I could not drive myself after my surgery for degenerative disc disease and cervical stenosis.

Perhaps now my friends and family might have an idea of what my life was like for a year?

Back then, my lockdown was medically necessary due to my own limits and weaknesses. Now, it is due to my lungs’ weakness and the fact that if I contracted Coronavirus, it could be very deadly for me due to my Pulmonary Alveolar Proteinosis. Getting put on lockdown despite physically being able to get out and about on good days is a difficult pill to swallow.

Prompt #2: STUDYING for People with Chronic Illnesses

Have you been spending the time at home studying or learning something new? Perhaps reading up on social media and blogging tips, new art or craft, perfecting a new dish or hobby? You might also be a student whose schooling life has been vastly impacted by the COVID-19 pandemic, or a teacher on the other side of it. You could even be studying how an animal, insect or nature behaves, a philosophy, mindfulness techniques, or researching about a topic.

This summer I bought 2 Pinterest courses by Jen (Digital SheEo’s Pinfinite Traffic Bootcamp; 15% off with Code: JOYOUS15) and Megan (Love Family Health’s Pinterest Ninja Course) that has really helped me rebrand my blog and create pins that are getting saves and clicks on Pinterest.

Prompt #3: WATCHING for People with Chronic Illnesses

You could be watching time fly by, watching your kids, or watching your diet. You could also be engrossed in a certain TV series or recommend a film to watch. Perhaps youโ€™re keeping an eye on the news intensely, or trying to guard your thoughts. You could also be watching and learning from a YouTube educational or fitness series, or something else.

Anyone who knows me and reads this blog knows that I love British television and movies. I am super excited about two PBS series coming this autumn – Endeavour (August 2020) and Roadkill starring Hugh Laurie (November 2020).

In the meantime, I am watching Season 3 of Ekaterina (Season 1 is on Amazon Prime, Season 2 and Season 3 are on IMDb TV Channel). Season 1 is probably my favorite season so far because Catherine the Great is still likable before her rise to power. In Season 2 (spoiler), watching her terrible relationships with her two sons was heartbreaking and turned me off. All in all, though, it is a much more faithful series compared to HULU’s pathetic The Great which butchers history.

So there you have it. My first ever linkup with A Chronic Voice. I hope you have enjoyed a glimpse into my current life and that you enjoy getting to know other bloggers with chronic illnesses thanks to the linkup.

Cheers and Stay Healthy!

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August 2020 Linkup Party for People with Chronic Illnesses. My life in lockdown with disabilities and Pulmonary Alveolar Proteinois. #pulmonaryalveolarproteinosis #linkupparty #achronicvoice #thejoyousliving

Continue the Conversation

What have you been occupying yourself with during the lockdowns?

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17 Comments

  1. Lisa Ehrman

    August 1, 2020 at 3:19 pm

    I also love British tv. Endeavor was one of my favorites! I also loved Ekaterina. I lay around all day, and enjoy streaming one season after another of great dramas. I see a lot of great things on Amazon Prime and then added Britbox for more fun. Thanks for sharing ๐Ÿ™‚

    1. thejoyousliving

      August 2, 2020 at 4:52 pm

      HI Lisa. I am so excited to “meet” someone who loves similar shows. We should be prime buddies. ๐Ÿ˜‰

  2. Nikki Albert

    August 3, 2020 at 6:50 am

    I too have been staying inside. My asthma has been out of control this year the likes it Never has been. And I can’t get it under control. Therefore if I were to get COVID19 it would not be good at at at this point so I have to stay in. My doctor gave me an additional medication to take and it has not helped… just not sure what is up with my lungs lately.

  3. Bill

    August 3, 2020 at 3:48 pm

    We don’t have any chronic illnesses so when things initially lifted a bit, we started to go out on tiny excursions. Now we’re back to staying inside, though.

  4. Matt Taylor

    August 3, 2020 at 4:28 pm

    My life hasn’t changed a ton, thankfully I don’t have any illnesses to worry about. I have been very good at “Watching” lol. I did finally decide to start exercising again, I have been gaining more weight lately, all those treats I have been eating. When the lockdown first happened, I was taking long walks in the late afternoons everyday, but it is hotter than Hades right now in Phoenix, so no thank you. lol

    1. thehappymommie

      August 5, 2020 at 12:53 am

      Its really tough for people to have a gathering or parties these days, specially the ones which have any sorts of illness, These are some amazing suggestions.Thank you ๐Ÿ˜Š

  5. Heather

    August 3, 2020 at 8:00 pm

    This is awesome! I know a number of bloggers that suffer from chronic illness. They will love this.

  6. Gervin Khan

    August 4, 2020 at 8:30 am

    I am having a good time reading your article, I know some of the people experiencing this kind of illness and I am sure they will get inspire reading this. I am also staying at home for 5 months now, I don’t have an illness but we have a protocol that need to be follow like only one person is allow to go out per household.

  7. Brianna

    August 4, 2020 at 12:29 pm

    I don’t have any illness but I have imagined how hard of a time it has to be for so many people! I’m even scared to go anywhere.

  8. Lyanna Soria

    August 4, 2020 at 1:38 pm

    I know someone who has chronic illness and I’m sure they’ll love this. Thanks for sharing and keep safe!

  9. Emman Damian

    August 4, 2020 at 9:43 pm

    I know someone with the same sentiments and problems. I’ll reach out to her to connect with you. Keep your head up high! ๐Ÿ™‚

  10. Romy Schorr

    August 5, 2020 at 12:44 am

    This is awesome! I love that the Internet has a place for everyone and their unique needs. Itโ€™s amazing that you are able to connect with others who have similar struggles no matter where they live

  11. Melanie williams

    August 5, 2020 at 4:13 am

    In the UK we do have so much good television that said we are running low on shows to watch x

  12. Ntensibe Edgar Michael

    August 5, 2020 at 5:17 am

    Well, it has been lots of writing, eating, jogging and watching lots of tv shows.

  13. Marie Phillips

    August 5, 2020 at 6:39 am

    I feel like I am more busy now than I was before all the lockdown stuff!!! I am working and schooling the kids from home. Those two things alone are never ending tasks!

  14. Mariska

    August 5, 2020 at 7:36 am

    This is such a nice article, reaching out to others with chronic illnesses. These must not be easy times for you. And it so lovely to read how you try to make the best of it. I’ll be looking into some of your show suggestions;)

  15. katrina Kroeplin

    August 6, 2020 at 2:36 pm

    i love this. i am disabled so it’s hard for me.

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