Showing posts with label quotes. Show all posts
Showing posts with label quotes. Show all posts

10 August 2018

Fibromyalgia Friday

Happy Fibromyalgia Friday. Here are some of my favorite new quotes:

Hope these have been encouraging to you. Have a good day.

24 July 2018

Being Adopted

On 24 July 1984 I arrived in Los Angeles by way of Seoul, South Korea, and Seattle, Washington to meet my adopted forever family. On 4 February 2017 I brought my baby boy, Captain Hastings Alyosha, home from Life Animal Rescue and understood just a wee bit of the joy and wholeness that comes to a parent's heart when connected with their baby. I will forever be grateful and full of joy knowing I was chosen by the King of kings, my family and my baby boy.

Here are just a few of my favorite quotes about adoption.

01 July 2018

God HAS a plan...

Happy Sunday and 1st of July!
My body is tired, drained and achy which always makes me feel more drained and tired emotionally so if you are like me looking for encouragement here are a few of my favorite quotes:

For more of my favorite quotes check out my Pinterest boards.

28 June 2018

Fibromylagia Frustrations

Hi guys! It is been a while since I gave a health report. Sometimes with dictation Apps I want to scream! For instance right now it just deleted everything I had already written. Somehow it thought that I said the words undo it. The joys of not being able to use my hands properly. The little women review that I wrote last time actually took probably 2 1/2 hours for me to right with hunting and pecking type motions. And even though I was just hunting and pecking with my main two fingers I still had a lot of pain in my hands and wrists afterwards. That's not of course to say that I didn't enjoy seeing Camarillo Skyway Playhouse's Little Women production. So let's talk about health...

Today I went to see a new neurologist. He was a very how do you put it matter of fact type doctor. He was reading notes on the computer from my previous doctors I assume and listening to my answers at the same time. He did do a check up and had me walking. It was very interesting because I did not have my cane and he had his hand on my elbow to steady me. He kept asking me to walk faster and laugh out loud Thankfully there is no falling on the floor that would've been very embarrassing. Not sure if I accomplish what he wanted but it was an experience. He seems to think that I have fibromyalgia as my first rheumatologist diagnosed me and so did the neurologist at Cedars-Sinai. So what do we do with this? He is going to be giving notes to my pain management specialist and my primary doctor. He's just keeping up with physical therapy and of course the usual exercise. He even mentioned possibly getting a personal trainer to help me on a day-to-day basis. I don't think that is one of the things insurance covers LOL. So what am I thinking?

I would love for the doctor or any doctor to say that I have one diagnosis and this is how we heal it. Unfortunately no one has ever been out to do that for me. Even the doctor says that it is likely I have several issues including fibromyalgia, cervical stenosis, possibly dysautonomia which that other rheumatologist suggested, and something to do with my lungs that the pulmonologist is working on. Yes. Deep sigh. If only things were simple LOL. So where does this leave us? Sometimes I feel like we're always going back to square one. I have tried diets (eg. Whole30), acupuncture, herbal supplements, et cetera.

Oh my gosh! Speaking of difficulties with dictation apps, it just decided I needed to open another webpage and closed out of my blogger page just now. I have had to go back and retype or redictate several sentences. Thankfully blogger saves automatically at different time points. But you can see how silly and crazy it can be and how difficult type/dictate a blog post every once in a while. Let alone emails and text messages. Okay off my rant and back to my original post…

I was saying it seems like we have tried most everything that Medi-Cal here in California Will cover. I am very grateful - - - please don't question - for all the wonderful doctor and money saving opportunities I have had through Medi-Cal such as my great surgery at USC Medical Center. It has been a true blessing these past few years. But hopefully we are looking at the bright side my disability will come through this summer and I will be eligible for Medicare. That does mean payments but I will have my disability check to cover it. Sorry I hope this is not huge Post full of errors and run-on sentences.

So the next step… I am looking into a clinic in Mission Viejo that my brother recommended. His coworker had a great experience there and was able to fully recover from her own autoimmune disease. There's a lot to research and look into. But we shall see! I am just so grateful for the support I have from my parents and my brother and my good friends. Where would I be without you all?
Lots of love. Time to go ice my elbows and my neck maybe take a nap. LOL. Hey all in the day of the life of someone with a chronic illness, right? XO

21 November 2017

Health: Three Years...

My home in London. 2014.
3 years ago, I was living the dream in London making lifelong friends and studying for my Masters. On 21 November 2014 I went to see my physician after things got worse post my earlier episode of Tonsillitis. My health had deteriorated as if overnight going from one day when I was up and about to the next when I couldn't see clearly, I was experiencing terrible neuropathy and weakness and pain in my hands and feet meaning I had to crawl to the kitchen for a glass of water that was too heavy for me to hold and I needed friends' help getting down stairs and to/from the doctor's office. Life was impossible or so it felt. Mum even had to fly out on Thanksgiving Day to help me pack up and fly home for the unforeseeable future as I recovered.

The doctor on 21 November 2014 (3 years ago) said that I had Chronic Fatigue Syndrome/Post Viral Fatigue and even gave me a doctor's note to take to doctors and employers excusing me because of "fatigue". I couldn't help laugh because it sounded so insane and I couldn't imagine anyone taking this diagnosis serious. Thankfully my advisor/professor at the university was extremely helpful and has been throughout this crazy process. Friends were AMAZING (Huge shout outs to Natasha, Mafe and Ola) and I couldn't have felt more loved if I tried.
pre-surgery. 2016.
Fast forward 3 years and what has happened...

  • I was diagnosed with CERVICAL STENOSIS and DEGENERATIVE DISC DISEASE in Summer of 2016. This really came as a huge surprise and is thanks to my neurologist, Dr. Alboiny, for being thorough in his research!!!!
  • I was diagnosed with FIBROMYALGIA in January 2017.
  • I experienced with LYME supplements but felt no difference.
  • I gained 30+ lbs. thanks to LYRICA and a couple other medications. BOOO!
  • I had SURGERY on 7 September 2016 at USC. What an amazing facility and staff.
  • I've sampled almost all drugs possible but am down to two -- Gabapentin and Duloxetine.
  • I've been in physical and aquatic therapy since 2016.
  • I was able to complete my university assessments (not including the dissertation) for decent marks.
  • I have been to the ER twice, once having to stay in hospital for a week of studies.
  • Have my very own wheelchair and walker and shower bench.
  • Adopted a Yulin Survivor dog, Hastings Alyosha, in February 2017.
  • Fallen at the Dallas Fort Worth Airport and been laughed at by staff there!
  • Applying for disability... what a nightmare.
  • Used several types of wrist/hand braces without success.
  • Been told by pain management specialists there is nothing they can do for me.
  • Seen countless doctors and specialists locally and at Cedar Sinai and USC.
I'm still at home, folks. Yep. 

My rescue dog. February 2017.
I still cannot use my hands to even cut a piece of fruit or meat. I use the free Apple dictation service (Horrid) and hunt/peck with my fingers. I use pillows to prop my hands/arms up to help lessen the pain. I still cannot walk without my walker or the arm of a friend/family member. There is constant neuropathy and pain in my hands and feet. I am using ice at all times when home for back, neck and legs. 
with Ashley at Sister Act. 2017.
I am not able to work or finish school in my current state. And now to add more to think about, I found out that my university has a 'standard' limit for how many years a student can be enrolled - 4 - and that means I am no longer enrolled as a student and would have to RE-enroll (£$) to complete my graduation project/dissertation.
My girlfriend Laura took me to tea for my birthday. 2017.
My happy days consist of some of the following: loving on my rescue dog (Hastings Alyosha) and our other rescue dog (Shadow), getting my afternoon nap (medication makes my fatigue/exhaustion even worse), making breakfast and lunch, being able to put away the dishes, making my bed and taking a shower, checking social media, taking the dogs on a short walk around the block, and/or maybe a conversation and visit from a friend. That's my day, folks. And usually I have 3-4 medical appointments per week so that takes up a lot of my time too.

And thanks to my blog I have been able to have excursions to the theatre or an art exhibit or the circus or etc. but those excursions come with a cost of 2 days at least of rest afterwards plus extreme pain when sitting or walking or just breathing.
an art exhibit i was able to attend in 2016.
Man, I did not mean to make this post a downer. Just wanted to share what's happened in the past 3 years. Trying to figure out what next... Physical therapist says I am walking better with more fluidity (no more tin soldier -- Yay!!) so that is probably our biggest cheer. Aside from that, nothing seems to be working much. We will continue to see... Right now my hands are screaming from hunting and pecking on the keyboard and my brain hurts from dealing with the faulty dictation service and I have a head cold (rah rah). To bed I go.

happy times in London with Natasha. 2014.
Have a great night and a huge thank you to all my amazing friends and family who've stood by me and not forgotten me and loved on me. I don't know if I would be here without y'all. <3 The hardest part of this illness is the "isolation". I cannot get myself out to see folks as I used to, I cannot pick up the phone without my hand spasming and I am often so tired and drained that the idea of texting someone is too trying and tiring. And i know people are busy and without me being at the same social gatherings it becomes hard too on others but without my true girlfriends and Derek I don't know how I would have survived the last 3 years without going seriously insane. 
So thank you Natasha, Ashley, Laurie, Laura, Kaz, Derek, Ola, Mafe, Heather and Misty for not forgetting me. Thank you for holding my hand, sending me mail, letting me cry, sitting there, and getting me out of the house among civilization!! You guys will never know how much you have helped.

22 September 2017

Chronic Illness: Feeling Low?

HI folks. If you are like me, you probably have terrible bouts of loneliness and depression. Not fun. But the good news is that there is always something worth smiling about and worth looking forward to. But we just have to remember, right? That's the tough part.

So hopefully this short video will be encouraging and so will these quotes I have found for you tonight.

xo Joy

29 April 2017

Y is for... Yesterday

For my 2017 challenge, I was not sure quite what I wanted to blog about. Numerous ideas were coming to mind but each seemed to require even more energy and strength. So I've decided to focus on an acronym for ART:
A - Artists (musicians, painters, photographers, writers, etc.)
R - Reading (books, poems, etc.)
T - Theater (movies, musicals, plays, etc.)

Today we're focusing on...


A - Yolanda Adams
Last year, I loved Tyler Perry's The Passion that featured Gospel's one and only Yolanda Adams.

R - Quotes Starting with "Y"
Last year, Courtney (Maui Jungalow) shared with me the quote "Yesterday ended at midnight." It has stuck with me this long year.

T - YouTube Videos
Last year, I discovered Kathie Lee Gifford's "Without You" song about adoption that has stayed in my heart and touched the hearts of my adoptive mom and other adoptees/ers that I know.

20 April 2017

Q is for... Quotes

For my 2017 challenge, I was not sure quite what I wanted to blog about. Numerous ideas were coming to mind but each seemed to require even more energy and strength. So I've decided to focus on an acronym for ART:
A - Artists (musicians, painters, photographers, writers, etc.)
- Reading (books, poems, etc.)
T - Theater (movies, musicals, plays, etc.)

Today we're focusing on... QUOTES

A - 
Autumn Landscape with Boats. Kandinsky.

There is no must in art because art is free.”  Wassily Kandinsky

R - 
William Wordsworth, by Benjamin Robert Haydon
"Fill your paper with the breathings of your heart." - William Wordsworth

T - 

"Well, for goodness sake, what's the matter with you people? Don't you know what beds are for? Or do you? Or is that the wrong thing to say?" - When Ladies Meet (1941)

13 April 2017

K is for...

For my 2017 challenge, I was not sure quite what I wanted to blog about. Numerous ideas were coming to mind but each seemed to require even more energy and strength. So I've decided to focus on an acronym for ART:
A - Artists (musicians, painters, photographers, writers, etc.)
- Reading (books, poems, etc.)
T - Theater (movies, musicals, plays, etc.)

So let's begin...

A - Lev Lvovich KAMENEV
Russian landscape artist Lev Lvovich Kamenev is unfortunately under appreciated and criticized for a 'sameness'. Funny enough, what I enjoy most about his work is the way his focal source of light draws the eye away from the mundane and 'sameness' whether it is a brook of water where the reflection of light in the water speaks of hope or a light in the window of a snow-covered cottage promising warmth and belonging...
Winter Landscape
R - John Keats
Who doesn't love to read a poem or quote by John Keats?

T - The King of Kings (1961)
This Biblical epic film may not the most popular but has a gorgeous soundtrack by Miklós Rózsa that was nominated for a Golden Globe Award and was the first major studio film to actually show Jesus' face. Another fun fact is that Orson Welles did the uncredited narration.

10 April 2017

H is for...

For my 2017 challenge, I was not sure quite what I wanted to blog about. Numerous ideas were coming to mind but each seemed to require even more energy and strength. So I've decided to focus on an acronym for ART:
A - Artists (musicians, painters, photographers, writers, etc.)
- Reading (books, poems, etc.)
T - Theater (movies, musicals, plays, etc.)

So let's begin...

A - Alexei Harlamov
Harlamov was a true success story. He was born the son of serfs in Russia who didn't gain their freedom until he was approximately 10 years old and rose to such eminence that he was considered a favorite of Empress Maria Fedorovna and Queen Victoria.
Portrait of a Young Woman.
Little Girl With Veil.

R - Homer
The author known as Homer is best known for his epic poems, The Odyssey and The Illiad. But you might be surprised by how many quotes you can pull from his writings...

T - "Heavy Meddle" (Last Man Standing)
Sanders & Ephraim. (c) ABC
I have seriously been replaying Last Man Standing's recent episode entitled: "Heavy Meddle" for the last few weeks.

Mandy (Molly Ephraim) and Kyle (Christoph Sanders) are too, too funny! They obviously have a great time getting into character and their fun is contagious even through the t.v. screen. Their chemistry and timing are *perfect* and both characters are extra lovable and tend to elicit the most laughter next to comedic geniuses Tim Allen and Nancy Travis. They feature in three scenes and this episode is a great reminder of why they are so well loved...

Even if you don't watch the show, if you are a fan of comedy and bucket loads of cuteness, take a peek at the episode playing on

29 March 2017

Wednesday Wisdom

Happy Wednesday! A few favourite pins from Pinterest to hopefully encourage and enlighten you!

Be sure to follow me on Pinterest for more great quotes!