Happy New Years!

09 January 2017

Hi love!

I hope everyone had a fabulous holiday season and New Year's. Can you believe is already 9 January 2017? I for one do not know where the time has gone. Sometimes it feels like just yesterday I was in London enjoying life to the fullest studying for my postgraduate work in Museum studies and making lifelong friends. And yet amazingly it has already been two years and two months since I left London after getting horribly sick. And yet other times it feels like 20 years since I was in London living life to the fullest. Where does the time go?
(c) The Joyous Living.
I thought I would start the year off with a quick health update.

First things first. For those of you that don't know my story I got extremely sick November 2014 and had to come home to Los Angeles so that my family could take care of me. Originally the doctor says that I will be back to school and work by the end of January 2015. It is now January 2017 and not much is changed as far as prognosis for getting back on my feet. I have had marked improvement in different areas and plenty of ups and downs and other areas. There have even been new issues since 2014, some of which are extremely debilitating frustrating.

In August 2016 I saw a new GP and neurologist who thought I had an MS. After several MRIs they discover that instead of MS I have cervical stenosis of the spine. Fast forward one month and I had surgery on 7 September 2016 at the amazing USC Keck hospital. Doctors and family and I have been hopeful that the surgery would fix much of what is wrong. Unfortunately as my surgeon explained many of my symptoms do not classify typically as cervical stenosis. So back to the drawing board we went and I have had more testing and a couple more diagnoses in the last couple months.

First, there is the diagnosis of Lyme disease which is incredibly controversial and many of my doctors don't even think it exists where it's possible for me to have it. Secondly, there is the diagnosis of fibromyalgia. The new rheumatologist says I have a classic case with all the trigger points and symptoms. You can imagine how very confusing and Overwhelming this can be. I am trying to weed through all the different opinions figure out what is best for me in the long term. Which trail so to speak should I go down...

In the meantime, I have been going to physical therapy for my neck and arms. The therapist and insurance have extended my original prescription for therapy several times because they say we are still long ways off. But I do feel some relief after therapy wishes good. But I don't know what I would do without my ice packs, Pillows, footstool, TENS machine and medication. It is a wonder some days that I can actually get out of bed.

As always my so-called short and quick update have gone long. So I will quickly wrap this up and just say that I am trying to stay positive and please pardon my lack of posts because it is so difficult to Use dictation services every time. As you can see there are numerous typos, Some of which I hope they've caught, and it can just be so tiring and draining. If anyone has any dictation Apps that they would recommend please do share in the comments below.

Until next time,

Joy

PS-I hope to start my reviews of doctors, Products and post-surgery clothing soon. Thank you for your patience.

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Thanks so much for sharing with me! Your thoughts and comments are always appreciated!
x Joy

 

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